For More Information About Porphyria

American Porphyria Foundation
P.O. Box 22712
Houston, TX 77227
Phone: (713) 266-9617
Email: porphyrus@aol.com
Internet: www.porphyriafoundation.com

National Organization for Rare Disorders Inc. (NORD)
55 Kenosia Avenue
P.O. Box 1968
Danbury, CT 06813-1968
Phone: 1-800-999-6673 or (203) 744-0100
Fax: (203) 798-2291
Email: orphan@rarediseases.org
Internet: www.rarediseases.org

American Liver Foundation (ALF)
75 Maiden Lane, Suite 603
New York, NY 10038-4810
Phone: 1-800-GO-LIVER (465-4837),
1-888-4HEP-USA (443-7872),
or (212) 668-1000
Fax: (212) 483-8179
Email: info@liverfoundation.org
Internet: www.liverfoundation.org

Additional Information on Porphyria

The National Digestive Diseases Information Clearinghouse collects resource information on digestive diseases for the Combined Health Information Database (CHID). CHID is a database produced by health-related agencies of the Federal Government. This database provides titles, abstracts, and availability information for health information and health education resources.

To provide you with the most up-to-date resources, information specialists at the clearinghouse created an automatic search of CHID. To obtain this information, you may view the results of the automatic search on Porphyria.

If you wish to perform your own search of the database, you may access the CHID Online website and search CHID yourself.

source: http://digestive.niddk.nih.gov/ddiseases/pubs/porphyria/index.htm