About Hirschsprung's Disease
This site contains information from government publications about Hirschsprung's disease that have been reformatted and reorganized. There are numerous links to the original documents.
The goal is to make the information easier to find and to allow the sharing of information between users.
This is a very big undertaking and you can help me help others. Please add your comments or questions to any topic that concerns you. If you know of additional resources please include links to them.
I am especially looking for:
If possible please include:
The goal is to make the information easier to find and to allow the sharing of information between users.
This is a very big undertaking and you can help me help others. Please add your comments or questions to any topic that concerns you. If you know of additional resources please include links to them.
I am especially looking for:
- Experiences of Hirschsprung's disease patients
- Experiences of family members of Hirschsprung's disease patients
- Experiences of caregivers experienced with Hirschsprung's disease
- Experiences of physicians experienced with Hirschsprung's disease
- Experiences of researchers experienced with Hirschsprung's disease
- Information about specific Hirschsprung's disease products
- Information about specific Hirschsprung's disease treatments
- Information about specific Hirschsprung's disease medications
- Information about hospitals specializing in the detection and treatment of Hirschsprung's disease
- Information about clinics specializing in the treatment of Hirschsprung's disease
- Information about physicians specializing in the treatment of Hirschsprung's disease
If possible please include:
- Links to Hirschsprung's disease websites
- Links to Hirschsprung's disease blogs
- Links to Hirschsprung's disease news articles
- Links to Hirschsprung's disease research articles

1 Comments:
Hi, My name is Maureen I have Hirschprungs. I had long segment and I have had 32 major surgeries and I lost count how many minor ones. I had 2 colostomy's 2 Ileostomy's. I am 41 and have an ileostomy now. I will answer any questions that you have. Maureen
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