About Wilson's Disease

This site contains information from government publications about Wilson's disease that have been reformatted and reorganized. There are numerous links to the original documents.

Here is an ongoing Wilson's disease discussion from the Wilson's Disease On-Line Discussion Group.

The goal is to make the information easier to find and to allow the sharing of information between users.

This is a very big undertaking and you can help me help others. Please add your comments or questions to any topic that concerns you. If you know of additional resources please include links to them.

I am especially looking for:

• Experiences of Wilson's disease patients
• Experiences of family members of Wilson's disease patients
• Experiences of caregivers experienced with Wilson's disease
• Experiences of physicians experienced with Wilson's disease
• Experiences of researchers experienced with Wilson's disease

• Information about specific Wilson's disease products
• Information about specific Wilson's disease diet plans
  
• Information about specific Wilson's disease treatments
• Information about specific Wilson's disease medications
• Information about hospitals specializing in the detection and treatment of Wilson's disease
• Information about clinics specializing in the treatment of Wilson's disease
• Information about physicians specializing in the treatment of Wilson's disease

If possible please include:

• Links to Wilson's disease websites
• Links to Wilson's disease blogs
• Links to Wilson's disease news articles
• Links to Wilson's disease research articles